MALS patient stories

Submit Your MALS Story

Struggling with rare symptoms and an undiagnosed illness can make you feel horribly lonely, continually misunderstood, and sometimes fill you with deep self doubt. Even once the MALS diagnosis is confirmed, sadly many patients still feel abandoned by clinicians who don’t understand MALS. By sharing our stories of struggle and victory we can help each other rise above the loneliness and anxiety of the uncertain. We hope you will consider sharing your story—whether you are a patient or the loved one of a patient. All stories are valid.

We will curate stories and post them in our patient stories section of this website—as a source of support and inspiration. Keep in mind that each of us is different and MALS manifests itself in idiosyncratic ways, so no MALS journey is identical. We hope, though, that reading about other journeys will help you with yours.

 
MALS patient story
MALS patient story
MALS patient story

View More Patient Stories

MALS patient story
Love What Matters

‘With tears welling up in my eyes, I was only able to mutter one question: ‘But why does it hurt so much when I eat?’ Nobody answered me.’

MALS patient story
Washington Post

Pain kept this young woman from eating for five years, and doctors didn't know why. 

MALS patient story
Think Like a Doctor

A Terrible Stomachache

MALS patient story
Think Like a Doctor

A Terrible Stomachache Solved!

 
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Help us with our mission today AND help us dream big for tomorrow. Help us bring awareness and quicker diagnosis to countless patients around the world.

If you’d like to mail a donation, please send a check to National MALS Foundation, P.O. Box 1292, Dedham, MA 02027.

Your donation is tax deductible to the extent provided by law.