Address

P.O. Box 1292

Dedham, MA 02027

Follow Us!

  • MALS Foundation Youtube
  • Facebook
  • MALS Instagram
  • MALS Twitter
  • MALS Linkedin

Copyright ©2019 National Median Arcuate Ligament Syndrome Foundation, Inc. All rights reserved. National MALS Foundation is a registered 501(c)(3) nonprofit organization. Please note that the National MALS Foundation provides the information on this website for the benefit of the MALS patient and clinician community. National MALS Foundation is not a medical provider or health care facility and thus can neither diagnose MALS nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before they seek any information related to MALS diagnosis and treatment.

© 2019 MALS Foundation

Web Services by Flair Communication

Get Involved

The National MALS Foundation is run by MALS patients and family members, and funded solely by donations from individuals around the country who care about making sure MALS patients are supported and clinicians are educated about this rare syndrome. All outreach, education, and fundraising is carried out by volunteers! We have a modest budget but a mighty mission. We hope you will help us in any way you can.

 

Donate

Every dollar donated to the National MALS Foundation goes directly to sustain our work of supporting patients and educating clinicians. We have no paid staff. But we do have essential annual expenses such as maintaining this website. And, we do have a bold vision for what we can accomplish in the future, such as funding for ongoing research and creating an international conference that will bring together vascular experts and clinicians from other related fields.

 

Help us with our mission today AND help us dream big for tomorrow. Help us bring awareness and quicker diagnosis to countless patients around the world.

 

If your donation is $50 or more, you can make your donation in honor of a compassionate clinician. We will send you a special certificate honoring your clinician’s MALS compassion and mastery, if you email us with the clinician’s name and institutional affiliation. You can then present certificate to your clinician. Please email us with the following information so that the certificate can be sent to you with your tax receipt:

 

Name of clinician being honored

Institution

Address of clinician, City, State, Zip*

Please also share why you are honoring this clinician

 

 

 

If you’d like to make a donation by check, please make payable to National MALS Foundation and mail to National MALS Foundation, P.O. Box 1292, Dedham, MA 02027

“One Million Steps for MALS”
 

When you suffer from MALS even walking slowly can become a challenge. Lack of nutrition causes your body’s muscles to break down. Lack of blood flow causes lightheadedness, dizziness, and sometimes fainting. But more acutely, the compression of the celiac artery causes more pain when you inhale and exhale deeply. Many MALS patients are forced to stop exercising, and some become bedridden.

 

In addition, dealing with unexplained symptoms and a rare diagnosis that is often one of exclusion can feel like an endless marathon. We find that patients often spend months and years going from one test to another without resolution or understanding from their clinicians. Often our mentoring focuses on taking one step at a time toward getting a MALS diagnosis, and then another long series of steps to finding the right MALS surgeon.

 

Getting from rare symptoms to ultimate surgery can feel like taking a Million Steps. Certainly, with MALS, running a 5K would be unthinkable. But each of us—patient and family member—can take one step at a time.

 

In this spirit, we hope you will consider organizing a MALS fundraiser in your community. Named “One Million Steps for MALS” the walking based fundraiser endeavors to have 500 people nationwide each year walking to raise money for MALS.

Here’s how the math works:

One Million Steps for MALS

  • 10,000 steps equals 5 miles

  • 10 participants can walk 100,000 steps in an afternoon

  • 50 participants can walk 500,000 steps in an afternoon

  • Sponsorship of $.10 per step is $1,000! Or $.01 per step is $100! It all adds up.

Just a few community events can secure One Million Steps for MALS, and the funds raised can benefit countless patients nationwide. If each participant secures sponsorship for their walk it will raise essential money toward MALS outreach.

A brisk walker can walk 5 miles in 1 hour 15 minutes

A slower walker can walk 5 miles in as little as 2 hours

With friends and community surrounding you, time melts away!

Locations, dates, and registration forms are still in process.

Soon we will have downloadable materials to help you organize and promote “One Million Steps for MALS” in your own community. In the meantime, we are exploring our first event for Fall 2019. Stay tuned!

If you want to organize a walk in your community, please contact us