Helpful Websites


NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 300 patient organization members,  is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Image by Tim Marshall

Our mission is to empower the world’s clinicians and caregivers with the best learning experience possible.


Established by the Rare Diseases Act of 2002, the Genetic and Rare Diseases (GARD) Information Center is a public health resource that aims to support people living with a rare disease and their families with free access to reliable, easy to understand information, in English and Spanish. There is no advertising on this website, and GARD does not endorse or promote any companies, products, or services.

Laboratory Scientist